Comments from patients:
“I would like to thank the MCWPA team on behalf of Rocky Mountain CFS/ME & FM Association (RMCFA.org). We are overwhelmed to be part of a campaign that will bring attention to such an important cause throughout the world. The fact that it is a grass roots patient driven advocacy effort makes us even more excited and proud. We look forward to [the] success of this campaign and many more awareness/advocacy initiatives in the future. Well done folks!” Mike Munoz
“Sad thing is we are too sick to do demonstrations. But we can take the bold action of announcing the public health is at threat of a possible retrovirus epidemic and we can put forward the message that we need more funding. No matter what, anyone who is willing to put such a bold statement of a new HIV-like virus possibly spreading disease, even through the blood supply, is worthy of news coverage, just because they were so bold as to make such a public announcement.” Tina Tidmore
“I am in tears and humbled by the commitment of all.” Celeste Cooper
“Right now, despite the encouraging new initiatives, this commitment has not been made. Instead, we appear to be locked in a PR battle between scientists with axes to grind. At this rate, years of our lives can and will be wasted unless a groundswell forces the hands of those with the purse strings.
I am confident that this new initiative is taking decisive action towards that end. And I am very comfortable that this Ad [Virus ad] in particular has the teeth and the truth (as we know it now) to make huge strides in the direction of healing.” Brian Simmons