On Monday December 6th the Washington Post published the first-ever informational ad on ME/CFS with emphasis on the new retroviral findings. The world watched while 17 million patients worldwide (one million in the US alone) refused to stay silent for one second longer.
Patients again seek to make a difference, this time working together to educate the new US Congressmen and Senators. The patient-led Fax “em Campaign aims to bring attention to the dire lack of funding, lack of care, and lack of understanding of ME/CFS; a formidable illness that often leaves sufferers housebound and unable to work. Patients call for equal funding and research Php Aide on a footing with other serious neuroendocrine-immune diseases. Patients appeal to members of Congress to heed the recent findings of possible retroviral involvement and question what they intend to do to resolve the issue.
Patients are asked to send a copy of the Washington Post ad and a brief message to their Congressman and Senator from Monday 30th January – Monday 6th February. MCWPA has provided a sample letter for ease.
For more details of the Fax “em Campaign, please visit the following site.