Starting March 1, ME/CFS patients are educating physicians around the world of retrovirus discoveries (XMRV) as well as other biological abnormalities found with this disease. With medical schools and government agencies not fulfilling this role, like so many other matters, patients are doing it themselves.
The campaign will last until March 15. Each patient is sending five letters and scientific documents to five physicians in their local area.
The campaign was organized by PANDORA and CFS Solutions of West Michigan. In January 2011, MCWPA did a patient survey and participating in this project was in the top three choices. Patients were given suggestions and instructions in the Patient Discussion board.