The grassroots ME/CFS Worldwide Patient Alliance formed in 2010 because of an increasing demand for sufferers to be empowered and have greater influence. For too long, the public and patients have been left out of the ME/CFS debates, yet they are the main ones impacted. One of the primary aims of the MCWPA is to enable sufferers of myalgic encephalomyelitis/chronic fatigue syndrome to make public statements concerning inadequacies in government agencies, lack of research cooperation and ignorance of their illness.
By using print and video advertisements, we hope to shift the discussion to improving conditions for patients. Through the support of PANDORA, a 501c3 non-profit organization, a Facebook Cause page was set up to announce the effort and start fundraising. This campaign is patient-driven, with a group of advisers with expertise filtering through ideas then presenting top selections for a patient vote.
MC/CFS Worldwide Patient Alliance invites patient organizations to do their own fundraising for the campaign and add their signature to the advertisements.
Thus far, the following organizations have shown their support by making donations: