Posted by tina on May 15th, 2011 at 1:49 am
For ME/CFS Awareness Month (May), ME/CFS patients are sending messages to President Barack Obama. Some are sending e-mails, some are sending faxes. One patient's wife spoke to Obama at a Reno Nevada town hall meeting.
ME/CFS patient Priscilla Gilman drew this cartoon just for this action. See more of her work at heaveninmyfoot.com Instructions for sending the fax can be found here.
Posted by tina on April 23rd, 2011 at 3:09 am
The prevalence of ME/CFS, also known as chronic fatigue syndrome and myalgic encephalomyelitis, is much higher than many realize. In the USA, the illness is more prevalent than lung cancer, leukemia and AIDS combined. - CDC and SEER Report, 5-year prevalence rates.
Also surprising, ME/CFS can be as disabling as late stage AIDS. - Dr. Nancy Klimas, with the University of Miami.
A recent Dutch study showed one in 900 children have ME/CFS, robbing them of their dreams of a productive and fu...
Posted by tina on March 1st, 2011 at 6:32 am
Starting March 1, ME/CFS patients are educating physicians around the world of retrovirus discoveries (XMRV) as well as other biological abnormalities found with this disease. With medical schools and government agencies not fulfilling this role, like so many other matters, patients are doing it themselves.
The campaign will last until March 15. Each patient is sending five letters and scientific documents to five physicians in their local area.
National Institutes of Health an...
Posted by tina on January 28th, 2011 at 7:07 pm
In January 2011, Dr. Nancy Klimas from the University of Miami and Tina Tidmore with MCWPA on the community radio station in Lake County California. The interest to do this interview was generated from an ad placed in The Washington Post on December 6, 2010.
In the interview Dr. Klimas and Tidmore explain the nature of the illness, discuss recent research controversies and discuss how the US government has failed to take the lead in solving this public health problem.
Listen to the interview he...
Posted by tina on January 6th, 2011 at 8:00 pm
ME/CFS patients are no longer invisible, no longer silent. From their beds and wheelchairs, many disabled patients worked together to place the first-ever ME/CFS ad in The Washington Post.
The recent studies show that more research funding is needed to prevent the next mother, father, or child from becoming chronically ill with this devastating disease.
Time for the US and UK governments to take the following actions:
Provide more funding for biomedical ME/CFS research;
Develop a national rese...
Posted by tina on December 27th, 2010 at 7:13 pm
For a limited time, the MCWPA ad in The Washington Post is available for a $50 donation or $10 a month donation. Click Here for Detailsadobe acrobat software download zp8497586rq...