Posted by tina on April 23rd, 2011 at 3:09 am
The prevalence of ME/CFS, also known as chronic fatigue syndrome and myalgic encephalomyelitis, is much higher than many realize. In the USA, the illness is more prevalent than lung cancer, leukemia and AIDS combined. - CDC and SEER Report, 5-year prevalence rates.
Also surprising, ME/CFS can be as disabling as late stage AIDS. - Dr. Nancy Klimas, with the University of Miami.
A recent Dutch study showed one in 900 children have ME/CFS, robbing them of their dreams of a productive and fu...
Posted by tina on March 1st, 2011 at 6:32 am
Starting March 1, ME/CFS patients are educating physicians around the world of retrovirus discoveries (XMRV) as well as other biological abnormalities found with this disease. With medical schools and government agencies not fulfilling this role, like so many other matters, patients are doing it themselves.
The campaign will last until March 15. Each patient is sending five letters and scientific documents to five physicians in their local area.
National Institutes of Health an...
Posted by MCWPA admin on February 17th, 2011 at 11:47 pm
On Feb. 16, the Journal of Virology published a study that shows the recently-discovered human retrovirus, XMRV, leads to chronic infection in multiple body organs.
Previous peer-reviewed studies show a link between XMRV and patients with aggressive prostate cancer and ME/CFS, also known as myalgic encephalomyelitis and chronic fatigue syndrome.
The study from the Department of Pathology and Laboratory Medicine at the Emory University School of Medicine shows Xenotropic Murine Leukemia...
Posted by MCWPA admin on January 30th, 2011 at 6:42 pm
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On Monday December 6th the Washington Post published the first-ever informational ad on ME/CFS with emphasis on the new retroviral findings. The world watched while 17 million patients worldwide (one million in the US alone) refused to stay silent for one second longer.
Patients again seek to make a difference, this time working together to educate the new US Congressmen and Senators. The patient-led Fax "em Campaign aims to bring atten...
Posted by tina on January 6th, 2011 at 8:00 pm
ME/CFS patients are no longer invisible, no longer silent. From their beds and wheelchairs, many disabled patients worked together to place the first-ever ME/CFS ad in The Washington Post.
The recent studies show that more research funding is needed to prevent the next mother, father, or child from becoming chronically ill with this devastating disease.
Time for the US and UK governments to take the following actions:
Provide more funding for biomedical ME/CFS research;
Develop a national rese...